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Want To, Can't, or Won't

The word we use for the stall, and the one we don't.

Why "depressed" might be the wrong word for what a lot of us live with, where the better word came from, and what actually gets the engine to turn over.

Monday, October 12 4PM Pacific / 7PM Eastern Join on Zoom →

You want to answer the text. You've wanted to since Thursday.

The phone is on the couch, face up. You know what you'd say. Whatever sits between you and hitting send doesn't feel like sadness, exactly. It feels like a car that won't turn over.

Then a doctor asks how you've been, and the closest word anyone has for it is "depressed." That word goes in the chart, and the chart decides what happens next.

Psychiatry has a closer word. It's avolition, and it's kept in the schizophrenia files. That happens to be where autism started too.

Tonight is about both words, and about what each one gets us.

Part One

"Depressed" is the word we have

Plenty of us have said "I think I'm depressed" when what we meant was "I can't make myself do anything." It's the nearest word in plain English.

Nobody has studied whether autistic people use the word that way. The research around that question is solid, though, and it all leans the same direction.

There's no depression questionnaire built for autistic adults. A 2018 review found every one in use was designed for non-autistic people. The lead researcher named the traits autism and depression share: social withdrawal, sleep trouble, reduced eye contact. (Cassidy et al., Autism Research, 2018)

Those questionnaires also share items with the scales that measure avolition. When researchers in schizophrenia lined the two up across 27 studies, low motivation, low energy, lost pleasure and pulling away from people showed up on both lists. Low mood and pessimism were the only things that belonged to depression alone. So they built a separate scale, the Calgary scale, just to tell the two apart. Nobody has built one for us. (Krynicki et al., Acta Psychiatrica Scandinavica, 2018)

Then there's reading your own mood. About half of autistic people have alexithymia, trouble identifying and naming feelings, against about one in twenty non-autistic people. If the mood is hard to read, the part you can report is the stall. The form counts the stall as depression. (Kinnaird, Stewart & Tchanturia, European Psychiatry, 2019)

The mistake runs the other way too. A 2024 review found real depression in autistic people getting written off as "just autism," and found autistic traits pushing depression scores up on their own. Depression is common for us: 23% of autistic adults are in it right now, and 37% will be at some point. The trouble is tools that can't separate the mood from the motor. (Hinze et al., Review Journal of Autism and Developmental Disorders, 2024; Hollocks et al., Psychological Medicine, 2019)

Why the word matters

The wrong word can come with the wrong prescription

A stall labeled depression usually gets an SSRI, the most common kind of antidepressant. A 2023 review found SSRIs caused apathy in 20 to 92% of people across studies. It got worse at higher doses and went away when the dose came down. So a stall treated as depression can pick up a second layer of stall from the treatment, and when that doesn't help, the next step is often a higher dose. No study has followed autistic people through that loop yet. (Masdrakis, Markianos & Baldwin, Acta Neuropsychiatrica, 2023)

Part Two

Avolition, and where it came from

Avolition is a drop in the drive to start and carry out purposeful things. Schizophrenia research calls it the core of the "negative symptoms," the ones defined by something missing.

The people studying it found something worth knowing. People with schizophrenia enjoy things in the moment about as much as anyone. What drops is the pull ahead of time, so the motivation "may not cross the threshold" needed to start. No medication is approved to treat it. (Strauss, Bartolomeo & Harvey, npj Schizophrenia, 2021)

The word sits close to us for a reason. In 1911, the Swiss psychiatrist Eugen Bleuler coined "autism" for the way some of his schizophrenia patients withdrew from the world. Leo Kanner borrowed it for children in 1943 and wondered if he was looking at an early form of schizophrenia. The first two editions of the DSM, the manual American clinicians diagnose from, filed autistic behavior under childhood schizophrenia. The split didn't become official until 1980. (Pina-Camacho, Parellada & Kyriakopoulos, BJPsych Advances, 2016; Autism History Project, University of Oregon)

The overlap never fully went away. A Yale study compared 53 autistic adults with 39 adults with schizophrenia, and on negative symptoms the two groups couldn't be told apart. 44% of the schizophrenia group met autism criteria on the standard autism assessment. A 2022 review puts avolition inside the closest match between the two conditions. They share some genes. They share catatonia too, the slowing and freezing that affects about one in ten autistic people. (Trevisan et al., Frontiers in Psychiatry, 2020; Jutla et al., 2022; Vaquerizo-Serrano et al., European Psychiatry, 2022)

For some of us the overlap is literal. Schizophrenia-spectrum diagnoses show up in about 4% of autistic people, against 0.46% of everyone else, and psychosis of any kind in 9.4% of autistic adults. When avolition arrives with psychosis, it calls for psychosis care, and early psychosis services exist for exactly that. The people living with both are our people, and this conversation belongs to them too. (Lai et al., 2019, via Phung et al., CMAJ, 2026; Varcin et al., Neuroscience and Biobehavioral Reviews, 2022)

Part Three

Three engines, one stall

A checklist scores what it can see: less starting, less reaching out, a flatter face. Three different things produce that picture, and each one needs a different fix.

Won't

The drive itself is down

Avolition in the strict sense. The pull toward the thing has faded. Sometimes it comes with a second condition. Often something specific is causing it.

Can't

You want to, and you can't start

Autistic inertia. The wanting is all there. Starting, stopping and switching are what break.

Want to

The drive is aimed somewhere else

Plenty of effort, going to whatever actually rewards you. The checklist reads it as low motivation because it's looking in the wrong place.

Can't has the best first-hand accounts. In 2021, 32 autistic adults described trouble starting, stopping and switching that they couldn't override by deciding to. For some it was severe enough that the researchers called it "more suggestive of a movement disorder." Prompting from another person helped. Stress made it worse. In a 2024 study, 24 autistic adults called inertia "the single most disabling part of being Autistic," and then described how the same pull gave them flow, hours of total absorption. (Buckle, Leadbitter, Poliakoff & Gowen, Frontiers in Psychology, 2021; Rapaport et al., Autism, 2024)

Want to shows up in the lab. In a task that traded button presses for money, autistic adults picked the harder option 64% of the time, against 46% for non-autistic adults. They cared less about the size of the payoff, and their intense interests predicted the extra effort. In another study, autistic traits went with less pleasure from social things than from things in general. A low score on a social-pleasure scale can mean the reward lives somewhere else. (Damiano et al., Journal of Neurodevelopmental Disorders, 2012; Novacek, Gooding & Pflum, Frontiers in Psychology, 2016)

The missing piece

Why stopping is as hard as starting

Monotropism is a theory of autism written by autistic researchers. It says our attention runs in a few deep channels instead of many shallow ones: "At any one moment, the amount of attention available to a conscious individual is limited." When most of it is down one tunnel, climbing out costs something, and so does climbing into the next one. Stuck at rest and stuck in motion are the same physics. On a questionnaire built from the theory, AuDHD people scored highest of anyone. (Murray, Lesser & Lawson, Autism, 2005; Garau et al., 2023, via National Autistic Society, 2025)

Part Four

What jams the engine

Schizophrenia research has a distinction worth stealing. Primary negative symptoms come from the condition itself. Secondary ones come from something else, and they can lift when that something else does.

The list of secondary causes reads like a lot of our medical histories: depression, medication side effects, and the deprivation that comes from long hospital stays or losing the people close to you. The same review warns that mistaking those for the illness getting worse leads to more of the medication that caused them. (Mosolov & Yaltonskaya, Frontiers in Psychiatry, 2022)

Medication comes up first for a lot of us. The FDA approved risperidone for "irritability" in autistic kids in 2006, and aripiprazole in 2009. Both are antipsychotics, drugs built for psychosis. In an Australian study of 188 autistic adults, 14% of their psychiatric medications had no matching diagnosis, and antipsychotics were among the most common. A 2026 clinical summary notes autistic patients are especially sensitive to antipsychotic side effects. Amitta Shah, who wrote the National Autistic Society's guidance on catatonia in autism, warns these drugs can trigger it. (PharmaTimes, 2006; The Transmitter, 2009; Cvejic et al., BJPsych Open; Phung et al., CMAJ, 2026; Shah, National Autistic Society, 2016)

Our version of deprivation is burnout: chronic exhaustion, lost skills and a lower tolerance for sensory input, after years of carrying more than anyone could recover from. Autistic adults who helped define it tie it to masking and say it's separate from depression. (Raymaker et al., Autism in Adulthood, 2020; Arnold et al., Autism CRC, 2021)

Trauma runs under all of it. 47% of autistic people have been bullied. In a small study of autistic teenagers, 43 to 57% had probable PTSD, mostly from events that don't meet the official definition of trauma, like bullying, loss and change. In schizophrenia, a study of 99 outpatients found childhood physical abuse and emotional neglect went with more negative symptoms. Nobody has run that study in autistic people. (Trundle et al., Trauma, Violence and Abuse, 2023; Lau-Zhu et al., Clinical Child Psychology and Psychiatry, 2026; Ware et al., Journal of Nervous and Mental Disease, 2024)

Some of what looks like won't is threat. Autistic adults describe shutdown as being frozen, a computer crash, "survival mode." In two general-population surveys, autistic traits and anxiety predicted demand avoidance about equally. That's the pattern where a request itself sets off the resistance. (Paris et al., Autism in Adulthood, 2025; White et al., Journal of Autism and Developmental Disorders, 2023; Johnson & Saunderson, Frontiers in Education, 2023)

The aha

Going still is the starting point. Control is what gets learned.

"Learned helplessness" was the famous 1960s finding that animals given shocks they couldn't escape stopped trying to escape. Fifty years later, the two researchers behind it said they "got it backward." Their work in rats showed that going passive under long, uncontrollable stress is the brain's built-in response. What animals learn is that they have control. Escaping alone wasn't enough, either. The brain had to register that control was possible. This is rat research, and the authors say little of it has been shown in people. For anyone who grew up in rooms too loud, too bright and too unpredictable to control, it reframes the stall as the brain doing what it was built to do under threat. The way out is control that lands. (Maier & Seligman, Psychological Review, 2016, via ScienceBlog)

What we can do

Secondary is the one place "eliminate" is realistic. Treat the depression. Recover from the burnout. Have a prescriber look at the medication list with all of this in mind. Nobody should stop or change a psychiatric medication on their own, and stopping some of them suddenly is dangerous. A dated note of when the stall started gives that conversation something to work with.

Part Five

Getting it to turn over

The wiring stays, and it gets scaffolding. What's piled on top of it can come off. Most of the studies behind these are small.

The aha

Some of what we call motivation may be ignition

People with Parkinson's freeze mid-step and can often walk again when something outside them sets the beat. In a trial with 153 of them, a beep in the ear or a buzz on the wrist, practiced at home for three weeks, improved walking and cut freezing for the people who froze. The gains faded once the training ended. Autistic adults said the same kind of thing helps with inertia: a prompt from someone else. Shah's approach to catatonia uses prompts to help movement too. And a small study of 56 autistic adults over 40 found parkinsonism, the slowness and trouble starting movement seen in Parkinson's, in about 27% of them, including 20% of those not on antipsychotics. It had no comparison group, so treat it as a lead. (Nieuwboer et al., Journal of Neurology, Neurosurgery and Psychiatry, 2007; Buckle et al., 2021; Shah, 2016; Starkstein et al., Journal of Neurodevelopmental Disorders, 2015)

For "can't"

Borrow an ignition

A person, a timer, a sound, a buzz on the wrist. Autistic adults named prompting and a compatible activity nearby. Body doubling, working alongside someone, fits here, though it barely has formal research yet. Like the Parkinson's cues, it works while you keep using it.

Buckle et al., 2021; Nieuwboer et al., 2007
For "want to"

Start from the interest

In the lab, interests carried effort. In flow, they carry hours. Hook the hard thing to the tunnel you're already in, or start the day in an interest and ride the momentum out of it.

Damiano et al., 2012; Murray, Lesser & Lawson, 2005
For defeat

Small wins that register

Recovery-Oriented Cognitive Therapy (CT-R) starts from what a person cares about and builds wins that chip away at the "why bother" belief. In an 18-month trial with 60 people with schizophrenia, it cut avolition scores well beyond usual care and improved daily functioning. It hasn't been tested in autistic people. It lines up with the rat finding that control has to land to count.

Grant et al., Archives of General Psychiatry, 2012; Maier & Seligman, 2016
For "won't" under pressure

Turn demands into choices

If anxiety and uncertainty drive the avoidance, lowering the threat lowers the stall. Two options instead of an order. Knowing what happens next. Saying the request without a deadline when there isn't one.

White et al., 2023; Johnson & Saunderson, 2023
For depression

Behavioral activation, adapted

Scheduling small, doable activities and tracking how they actually feel. A UK trial with 70 autistic adults found 86% stayed with the adapted version against 54% on usual care, with early signs it reduced depression. A full trial is still needed.

Russell et al., Health Technology Assessment, 2019
For medication effects

A review, with the prescriber

Antidepressant apathy goes away when the dose comes down. Antipsychotic side effects get managed rather than mistaken for the condition. Bring the dates. Change nothing on your own.

Masdrakis et al., 2023; Mosolov & Yaltonskaya, 2022
For trauma

Trauma therapy, adapted

EMDR, a trauma therapy built around eye movements, looked workable in a small Dutch study of autistic adults, with large drops in PTSD symptoms that held at follow-up. Researchers say therapy should be adapted to how autistic people think.

Lobregt-van Buuren et al., Journal of Autism and Developmental Disorders, 2019; Lau-Zhu et al., 2026
For burnout and catatonia

Less load, more structure

Burnout recovery runs on cutting demands, sensory breaks, rest and autistic company. For catatonia-type breakdown, Shah's approach finds and removes stressors, uses prompts, adds structure and protects enjoyed activities. That one needs a clinician involved.

Raymaker et al., 2020; Shah, 2016
Bring these to the room

Pulling the engines apart

These aren't a diagnosis. They're something to take to a clinician so you aren't stuck with whatever word got written down first.

Has "depressed" been your word for this?

Say what you actually meant when you used it.

If the ability to start came back tomorrow, would the sadness still be there?

Low mood and pessimism point toward depression. A stalled engine with a steady mood points somewhere else.

Do your interests still pull you?

In the lab, interests carried effort. If they still do, the drive is there and aimed somewhere.

Is it the starting that breaks, or the wanting?

Wanting to and not being able to start is inertia. Not wanting is closer to avolition.

Did it start or get worse around a medication change?

Write down the date. A prescriber can use that.

The lines you've heard

What people say

"You just have to want it more."
For inertia, wanting was never the missing part. In the research, what helped was a prompt from outside.
"You can do your special interest for twelve hours. You're not stuck, you're lazy."
That's the motivation working. The lab data shows autistic effort pointed at what rewards us. The work is building a bridge from the tunnel you're in to the thing that needs doing.
"Sounds like depression."
Maybe. Ask what happens to your mood if the doing comes back. If the sadness leaves with the stall, the word might be wrong, and so might the treatment.
The receipts

Where all of this comes from

Part One

Cassidy et al. (2018). Measurement properties of tools used to assess depression in autistic adults. Autism Research.
Krynicki, Upthegrove, Deakin & Barnes (2018). The relationship between negative symptoms and depression in schizophrenia. Acta Psychiatrica Scandinavica 137(5):380–390.
Kinnaird, Stewart & Tchanturia (2019). Investigating alexithymia in autism. European Psychiatry 55:80–89.
Masdrakis, Markianos & Baldwin (2023). Apathy associated with antidepressant drugs. Acta Neuropsychiatrica 35(4).
Hinze et al. (2024). The presentation of depression in depressed autistic individuals. Review Journal of Autism and Developmental Disorders. Hollocks et al. (2019), Psychological Medicine 49(4):559–572.

Part Two

Pina-Camacho, Parellada & Kyriakopoulos (2016). "Autism spectrum disorder and schizophrenia: boundaries and uncertainties." BJPsych Advances 22:316–324.
Crespi (2010), and reply by Craddock & Owen, "Revisiting Bleuler: relationship between autism and schizophrenia." British Journal of Psychiatry 196:495–497.
Autism History Project, University of Oregon, "Autism in the DSM."
Strauss, Bartolomeo & Harvey (2021). "Avolition as the core negative symptom in schizophrenia." npj Schizophrenia 7:16.
Trevisan, Foss-Feig, Naples, Srihari, Anticevic & McPartland (2020). "Autism spectrum disorder and schizophrenia are better differentiated by positive symptoms than negative symptoms." Frontiers in Psychiatry 11:548.
Jutla et al. (2022). "Autism spectrum disorder and schizophrenia: an updated conceptual review." Autism Research.
Phung, Greben, Fernandes & Chopra (2026). "Autism spectrum disorder and co-occurring schizophrenia." CMAJ 198(11):E411, citing Lai et al. (2019), Lancet Psychiatry.
Varcin et al. (2022). Occurrence of psychosis and bipolar disorder in adults with autism. Neuroscience and Biobehavioral Reviews 134:104543.
Vaquerizo-Serrano, Salazar de Pablo, Singh & Santosh (2022). Catatonia in autism spectrum disorders: systematic review and meta-analysis. European Psychiatry 65(1):e4.

Part Three

Damiano et al. (2012). Effort-based decision making in adults with autism spectrum disorders. Journal of Neurodevelopmental Disorders 4:13.
Novacek, Gooding & Pflum (2016). "Hedonic capacity in the broader autism phenotype." Frontiers in Psychology 7:666.
Buckle, Leadbitter, Poliakoff & Gowen (2021). "'No way out except from external intervention': first-hand accounts of autistic inertia." Frontiers in Psychology 12:631596.
Rapaport, Clapham, Adams, Lawson, Porayska-Pomsta & Pellicano (2024). "'I live in extremes': autistic adults' experiences of inertial rest and motion." Autism 28(5):1305–1315.
Murray, Lesser & Lawson (2005). "Attention, monotropism and the diagnostic criteria for autism." Autism. Garau et al. (2023) Monotropism Questionnaire, via National Autistic Society (2025), "What is monotropism?"

Part Four

Mosolov & Yaltonskaya (2022). Primary and secondary negative symptoms in schizophrenia. Frontiers in Psychiatry 12:766692.
PharmaTimes (2006) on the FDA's risperidone approval for irritability in autism, ages 5 to 16. The Transmitter (2009) on the aripiprazole approval, ages 6 to 17. Cvejic, Arnold, Foley & Trollor, psychotropic use in the Australian Longitudinal Study of Adults with Autism, BJPsych Open.
Shah (2016). "Catatonia and catatonia-type breakdown in autism." National Autistic Society.
Raymaker et al. (2020), Autism in Adulthood 2(2):132–143. Arnold, Higgins, Weise, Desai, Pellicano & Trollor (2021), Autism CRC report on autistic burnout.
Trundle, Jones, Ropar & Egan (2023). Prevalence of victimisation in autistic individuals. Trauma, Violence and Abuse 24(4):2282–2296.
Lau-Zhu et al. (2026). Experiences of trauma and PTSD symptoms in autistic adolescents. Clinical Child Psychology and Psychiatry 31(2):614–627.
Ware, Misiak, Hamza, Nalla & Moustafa (2024). The impact of childhood trauma on the negative symptoms of schizophrenia. Journal of Nervous and Mental Disease 212(9):460–470.
Campellone, Sanchez, Fulford & Kring (2019). Defeatist performance beliefs in college students. Psychiatry Research 272:149–154.
Paris, Lodestone, Houser & Lewis (2025). "Shutdowns are like you're stuck on the blue screen of death." Autism in Adulthood.
White et al. (2023), Journal of Autism and Developmental Disorders 53(7):2680–2688. Johnson & Saunderson (2023), Frontiers in Education 8.
Maier & Seligman (2016). "Learned helplessness at fifty: insights from neuroscience." Psychological Review, as reported by ScienceBlog.

Part Five

Nieuwboer et al. (2007). "Cueing training in the home improves gait-related mobility in Parkinson's disease: the RESCUE trial." Journal of Neurology, Neurosurgery and Psychiatry 78(2):134.
Starkstein, Gellar, Parlier, Payne & Piven (2015). "High rates of parkinsonism in adults with autism." Journal of Neurodevelopmental Disorders 7:29.
Grant, Huh, Perivoliotis, Stolar & Beck (2012). Randomized trial of cognitive therapy for low-functioning patients with schizophrenia. Archives of General Psychiatry 69(2):121–127.
Russell et al. (2019). Guided self-help for depression in autistic adults: the ADEPT feasibility trial. Health Technology Assessment 23(68).
Lobregt-van Buuren, Sizoo, Mevissen & de Jongh (2019). EMDR as a feasible and potentially effective treatment for autistic adults. Journal of Autism and Developmental Disorders 49(1):151–164.

Several of these studies are small, early or done in other conditions. Where a finding comes from schizophrenia, Parkinson's or rats, the guide says so. Nothing here is medical advice.

How we hold this

  • You can pass on anything. Pass is a complete sentence.
  • Talking about schizophrenia and psychosis here is talking about our people. Some of us live with both. No flinching.
  • Nothing tonight is a diagnosis, and nobody changes a medication because of a Monday call. Take what's useful to the person who prescribes.
  • Camera off, blanket on, stimming freely. Come however you can come.

This one can bring up years of being called lazy, and the meds that made it worse. Both are allowed in the room. If something lands hard, say so in the chat or step away and come back.

Name the engine.

Bring one thing you've been stuck on, and the word you've been using for it.