Hey Sol, I'm waking up this morning feeling a bit overwhelmed, and I don't really know any way to alleviate what's going on in my brain other than communicate.
This will probably be a long winding e-mail and a bit stream-of-consciousness. Please don't feel obligated to read it through. But putting the words down in my journal just isn't going to do anything for me.
To save you some time, I've had chatGPT craft a tl;dr:
TL;DR: I understand that my removal from the NeuroSpicy Club wasn't your decision, but the way it was handled has been profoundly distressing. Losing access to the community, my posts, and my connections without prior communication or collaboration has had a significant emotional impact on me. I'm reaching out because of the trust I've placed in you as a coach and leader — I want to share how this experience has affected me, hear your perspective, and explore whether there's any path forward or lessons to be learned from this situation.
I'm not sharing my feelings here because I'm angry at you or want you to feel bad. But I also feel it is fair to share the impact this has had on me.
I know you're not a medical doctor, and The NeuroSpicy Club is not a mental health support group. At the same time, I think it'd be irresponsible to not acknowledge that your coaching services and the NeuroSpicy Club are a clear supplement to other mental health services and are an inevitable substitute for those of us without other forms of care available. From that starting point, I think it's reasonable to suggest that the credo "Do No Harm," can be applied to your work despite with our without swearing the Hippocratic Oath.
Unilaterally removing someone from their community is a form of cultural violence. While comparing my removal from the NeuroSpicy Club to the displacement of thousands of Japanese Americans during World War 2 is overly dramatic to the point of histrionics, I think it's fair to recognize that in 2024 our digital communities are as integral to the human experience as the ones we reside in, and that in both cases folks were suddenly displaced without warning, explanation, or an opportunity to collaboratively find a better solution to the respective concern.
I've never really participated in group therapy under the supervision of a licensed therapist, but — given the amount of bureaucratic policies inherent in our mental health care system — I would imagine that there are ethical guidelines around when it would be appropriate to remove a patient from their group therapy along with specific dictums on how the transition of care should be handled.
Instead, I received an e-mail notifying me that my post about creating a neurodivergent cohousing community had been taken down for "self-promotion," and before I had finished writing a response, I received a follow up informing me that I had been removed from the group. With all the grace of a corporate layoff and security escorting their employees out of the building before they have the time to gather their personal effects, I found myself locked out of Skool, my writings gone and — it seemed — no way to contact the people I had met since I joined.
I was charging my car when I got the news. I called my mom in a state of shock and went non-verbal for the first time as far as I can recall in my life. The words were there in my head, but making my mouth articulate the sounds required to communicate intelligible speech suddenly became a daunting exercise. Surprisingly to me the sound that came out when words would materialize sounded more like I was trying to mock the disabled than communicate. Fortunately that quickly subsided and I was soon able to communicate normally.
After getting home, and fumbling around with Skool for a bit, I realized that since I hadn't been kicked out (expelled?) from Skool — just the NeuroSpicy Club — I could still message my friends I'd met. And then I saw the initial greeting from Sebastian. I clicked on the message and saw the green light that he was presently active and then proceeded to do the thing that everyone has advised me against my whole life, but which I cannot resist out of fear that death by rumination is real.
I sent Sebastian a message.
[Full Sebastian DM exchange reproduced verbatim in Phase 3a: Skool DMs — Josh & Sebastian]
By this point my background processing has continued its work around Sebastian's stated reason for my ejection.
"Your thesis is that an autistic didn't consult with the perceived authority figure before acting on his own agency to maintain a pattern they were relying on to sustain their mental health and for that reason should be banned from the community? Am I interpreting that wrong?"
Sebastian: "Hi Josh, I hear ya, I'm autistic as well...And there are many things I need to work on myself — its the reason I created this community. You seem like a cool guy and I'm sad I wasn't able to get to know you better. Sol says you are building a discord server — or something along those lines. I would encourage you to create your own community. You seem to be well suited to having your own community you can call your own. Please take this as a compliment and even offer the motivation to pursue your own thing. Maybe I am wrong, but if this is something you really want to be doing — then let this be the opportunity to make it happen. Lemons to lemonade, bro."
It wasn't easy to put aside my ego after you decided to go with Sebastian and Skool and cancel the project we had been working on together as part of our work trade agreement for your coaching services. But as I started attending the group sessions and they then were deprioritized in favor of the NueroSpicy Club, I bit the bullet and subscribed as I realized how helpful they had been for my growth and wellbeing.
Safe spaces are hard to come by and being a part of this group has been a huge sustaining force in getting through the past few months. I'm sure you noticed that I was very direct in asking if YOU would remove me from the group if I posted the discord. I was communicating that in no way would I do anything to jeopardize my ability to stay in the group.
It didn't occur to me that posting a time and a link to my own Zoom during a week there were no support group meetings would be the cause of my termination. And beyond that, it never crossed my mind that Sebastian was the one in charge of the operation.
Anyhow, I think I'm successfully running out of steam and have said what I feel needs to be said. If I were under the impression that you wanted me out of the club, this would be the time that I would plead mercy on the court to reverse my banishment and allow me to return to the community.
But from what I've gathered so far, it doesn't seem like you want me banned, so I thank you for your time in hearing me out over such a long e-mail.
I hope to hear back soon with an update regarding my membership status.
Best,
Josh