Home Creative Processing The Work Product Monday Guides FAQ About Join Refugees →
Welcome Letter The Book Music Roots About Refugees Constitution Launch Archive
NeuroSpicy Refugees

The Wall You
Can't See Coming

On the body that speaks first, and the "no" you can't explain.

Mondays 4PM Pacific / 7PM Eastern Join on Zoom →

You wanted to do the thing. You planned to do the thing. And then a wall came up out of nowhere, and now you physically cannot start, and you have no idea why, and there's a fresh layer of shame on top for good measure.

Or the day fell apart and you never saw it coming. No warning, no gathering storm you could read. One moment fine, the next flooded, as if the meter skipped straight from empty to alarm.

Tonight is about those walls, and why we so rarely see them coming. It turns out these two experiences, the sudden "no" and the sudden flood, are wired to the same thing: a body that's talking the whole time, in a language we were never taught to read.

Part One

The body speaks first

Before there's a feeling you can name, there's a signal in the body. For a lot of us, that signal comes in faint, or scrambled, or not at all, until it's already a wall.

Interoception, the eighth sense

Past the familiar five, and past balance and body-position, there's interoception: the sense of your own insides. Hunger, thirst, temperature, needing the bathroom, a racing heart, the tight chest that means an emotion is arriving. (the "eighth sense"; insular cortex research) It's the feed your brain uses to know how you are. And when the feed is quiet or noisy, you're left guessing at your own state, working out how you feel from the outside in, like everyone else has a dashboard you were never given.

The part that reframes everything

It's less about autism, more about alexithymia

Here's what the research actually shows. The interoception difficulty isn't reliably an autism thing on its own. It tracks with alexithymia, difficulty identifying and describing your own emotions, which co-occurs with roughly half of autistic people. Studies that control for it find alexithymia, not autism, is what's linked to atypical interoception. (Shah et al., 2016; Frontiers meta-analysis, 2025) So if you've ever been told your "emotional deficit" is just how autism is, the truer story is that a readable body signal is missing underneath it.

Not always too little

Hyper, hypo, or scrambled

Interoception differences aren't only about signals being too faint. Some of us feel internal sensations too intensely, some too little, and some get them but can't map them to meaning, a pounding heart that never gets connected to "I'm anxious." (Reframing Autism; Frontiers, 2025) All three leave you in the same spot: acting on internal information you can't clearly read.

74%

of autistic adults report significant interoceptive confusion unless their bodily signals are extreme. (Frontiers meta-analysis, 2025) That's the whole "wall" problem in one number: you don't feel it building. You feel it once it's already too big to miss.

Part Two

The "no" you can't explain

Now the other wall. You want to do something, and your body refuses, hard, and it feels like sabotage from the inside. It isn't. It's a threat response, and it's protecting something real.

Demand avoidance, from the inside

Sometimes a demand, any demand, lands on the nervous system as a threat. Not annoying: threatening, the way a real danger is. The body drops into fight, flight, freeze, or fawn, and the "no" that comes out is the autonomic system trying to protect your autonomy. (Newson; PDA literature) From the outside it looks like refusal or defiance. From the inside, in the words of the research, it's "the nervous system fighting for its life against a perceived threat." Not laziness. Not stubbornness. A protective reflex you didn't choose.

The detail that explains so much

The same wall goes up even when you want to

This is the part that makes people think they're broken. The threat response fires the same whether the demand comes from someone else, from circumstance, or from you wanting to do the thing yourself. You can genuinely want to start, and hit the identical wall. (Neurodiverge; PDA North America) That's why "but I chose this" doesn't dissolve it, and why the shame runs so deep. It was never about not wanting to.

A kinder name

A Persistent Drive for Autonomy, not just avoidance

Many in the community reframe PDA from "Pathological Demand Avoidance" to "Persistent Drive for Autonomy," same letters, better mechanism. It moves the frame from "what's wrong with you" to "what your system is protecting," which is freedom and safety. (Kenny & Doyle, 2024; Psychology Today, 2024) Note too: everyday neurodivergent demand avoidance (from sensory load, executive strain, task-initiation) is common and isn't the same as a full PDA profile. Tonight's frame fits the whole spectrum of it.

Stage 1
A demand arrives. External, implicit, or your own. The source doesn't matter to the response.
Stage 2
The nervous system reads threat. Neuroception, the body's below-conscious safety scan, flags a loss of autonomy.
Stage 3
The wall goes up. Fight, flight, freeze, fawn. Refusing, distracting, negotiating, going blank, shutting down.
Stage 4
You're left confused. Because you couldn't feel stages 2 and 3 happening, only the wall they built.

"Neuroception" is Stephen Porges' term for the body's subconscious surveillance of safety and threat.

Where the two meet

Why you can't see the wall coming

Put the two halves together and the mystery dissolves. The demand fires a body-level threat response first, below thought. But if your interoception is low, you can't read that response as it builds. So you never feel stages two and three. You only meet the wall.

Interoception is the instrument panel. Demand avoidance is one of the readings on it. When the panel is dim, the reading arrives as a surprise every time, the sudden "no," the sudden flood, the meltdown that seemed to come from nowhere. It didn't come from nowhere. It came from a channel you couldn't tune into.

Which is oddly hopeful. The wall isn't random and it isn't a character flaw. It's a signal you couldn't hear yet. And hearing, unlike character, is something you can practice.

Part Three

Catching the wall earlier

One integrated practice, because the two problems share one solution: get a little more access to the signal, and work with the nervous system instead of against it. Gently, and without turning your own body into another demand.

Read the signal · start with the extremes

Build interoception from the loud end down

You don't learn to read faint signals by straining for faint signals. Start where the body already shouts: right after exercise, in a hot shower, when you're clearly starving. Name what you notice, out loud or on paper. You're building the vocabulary on the signals you can already feel, then working inward toward the quieter ones over time.

Interoceptive-awareness building, per occupational-therapy and autism-affirming practice (Kelly Mahler's work)
Read the signal · gently

Body scans, with a real caveat

Brief, regular check-ins ("what's my chest doing, my jaw, my stomach?") can improve interoceptive awareness over time. One honest note: mindfulness helps some people here and backfires for others, turning attention inward can amplify distress if signals are already too loud. Try it lightly, keep it short, and drop it if it makes things worse. It's a tool, not a mandate.

Interoception-and-mindfulness findings, with the mixed-results caveat, per the research
Read the signal · externalize it

Track the wall from the outside

If the inside is hard to read, read the outside. Note when the walls tend to hit, time of day, after what, on what kind of demand. Patterns you can't feel internally often show up plainly in a log. The record becomes the early-warning system your interoception can't provide yet.

Lower the threat · reduce the demand-ness

Strip the "demand" out of the task

Since the trigger is the demand-shape, not the task itself, change the shape. Turn "I have to" into "I could." Offer yourself real choices. Make it a game, a challenge, a role, an experiment. Approach sideways rather than head-on. You're not tricking yourself; you're removing the threat cue so the nervous system stops defending.

Low-demand, choice-based, autonomy-preserving approaches, per PDA-affirming practice (PDA Society; Neurodivergent Insights)
Lower the threat · restore autonomy

Give the system back its control

The wall protects autonomy, so hand autonomy back. Do it in your own order, on your own timeline, your own way. Declare that you can stop anytime, and mean it. Often just knowing you're free to not do it is enough to let you do it. The exit being open is what makes the room enterable.

Autonomy-restoring strategy, per Persistent-Drive-for-Autonomy framing
Lower the threat · regulate first

Settle the body before you ask anything of it

A threatened nervous system can't be reasoned with, it has to be soothed. Movement, deep pressure, a long exhale, a sensory anchor, co-regulation with a calm person or a body double. Lower the baseline threat level first, and the wall often lowers with it. You're not forcing the door; you're making the room feel safe enough to enter.

Nervous-system-first regulation, per polyvagal-informed and PDA-affirming approaches
The one that ties it together

Drop the second wall: the shame

Most of the damage isn't the wall. It's the self-attack that follows, "what's wrong with me, why can't I just do this." That shame is itself a threat cue, so it makes the next wall more likely. Naming the mechanism ("that's my threat response, not my character") is the single most useful move, because it stops you from building wall number two on top of wall number one.

Why the usual advice fails here

What people say, and why it backfires

"Just push through it."
Pushing through a threat response deepens the threat. It teaches the nervous system the demand really was dangerous. Force compounds the wall. Safety is what lowers it.
"Just listen to your body."
Kind, and it assumes a signal you may not be able to hear. If interoception is low, "listen to your body" is like "just read the sign" to someone the sign is invisible to. The skill has to be built, not summoned.
"You clearly don't really want it."
The whole point is that the wall fires even when you desperately want it. Wanting was never the variable. The threat response doesn't check your preferences first.
"Just be more disciplined."
Discipline is more pressure, and pressure is the trigger. You can't willpower your way out of a wall that willpower-as-demand is building. Less threat, not more force.

The wall was never you failing. It was a signal you couldn't hear yet.

If you want to go further

Where this comes from

The research behind tonight

Shah, Hall, Catmur & Bird (2016). "Alexithymia, not autism, is associated with impaired interoception." The study that separated the two, and reframed the whole picture.
Frontiers in Psychiatry (2025). Systematic review and meta-analysis of interoception in autism, including the finding that ~74% report interoceptive confusion unless signals are extreme, and that ~50% of autistic people have co-occurring alexithymia.
Elizabeth Newson coined "Pathological Demand Avoidance" in the 1980s; the community reframe to "Persistent Drive for Autonomy" keeps the acronym and improves the mechanism.
Stephen Porges — "neuroception," the body's subconscious surveillance of safety and threat, underpinning the demand-as-threat model.
Kelly Mahler — occupational-therapy work on building interoceptive awareness, the "start from the loud signals" approach.

We credit these because the ideas are borrowed, not ours. Naming our sources is how a peer space stays honest.

How we hold this

  • You can pass on anything. Pass is a complete sentence.
  • Bring a wall you keep hitting, or a signal you wish you could read, or just listen.
  • Camera off, blanket on, stimming freely. Come however you can come.
  • Nothing here is a prescription. Take what fits your wiring and leave the rest, refusing the parts that don't fit is, fittingly, allowed.

This is peer support and shared information, not treatment or diagnosis. PDA especially isn't a formal diagnosis, and interoception differences can overlap with other things worth care. If reading your own signals has become genuinely distressing, or the walls are taking your work, sleep, or relationships, a neurodiversity-affirming professional can help more than a Monday call can. Needing more than us is not a failure.

You weren't ignoring the warning. There was no warning.

The body was speaking the whole time. The work isn't forcing the wall down. It's learning, slowly and gently, to hear the signal before it becomes one.