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NeuroSpicy Refugees

Paid Less, Charged More

The gap between us and them, and how we close it together.

We bring home less and pay more to live the same life. Tonight we measure the gap from every side, dig for why it's there, map what we can do about it ourselves, and put a proposal on the table.

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The bill was twenty-two dollars. The late fee was thirty-nine.

You had the money. The envelope sat on the counter for three weeks, under the charger you'd already bought twice.

That same month you nailed the work sample and bombed the interview. The job went to the guy who made eye contact. Your SSI renewal packet is in the pile with the envelope, and you haven't opened that one either.

Nobody adds these up. Tonight we do, from every side we could find a number for. Then we keep asking why until we hit the bottom. At the bottom there's a proposal, and you get a say in it.

Part One

The gap, from every side

It starts at the interview and follows us into the bank account, the benefits office and the pharmacy. No single number below is the gap. The gap is what happens when they all land on the same person.

Angle one

Getting hired

The door is where the gap opens, and researchers have caught it happening on paper.

26%

fewer callbacks for saying the word

Researchers sent 6,016 applications for real accounting jobs. Same qualifications. A third of the cover letters mentioned Asperger's, a third a spinal cord injury, a third nothing. Disclosing either disability got 26% less employer interest. For applicants with experience, the gap was 34%. (Ameri et al., ILR Review, 2018)

<15

employees, where most of it happened

The penalty was concentrated in small private companies with fewer than 15 workers. The ADA doesn't cover them. (Ameri et al., 2018)

The interview grades the performance

In a UK study, employment professionals scored autistic interviewees lower on the quality of their answers, and lower on confidence, communication and likeability. When the questions were rewritten to say plainly what was being asked, one step at a time, the gap got smaller. The format was doing part of the damage. It pairs with last week's receipts: strangers rate autistic people less likable within seconds, and the penalty vanishes on the transcript. (Maras et al., Autism, 2021; Sasson et al., Scientific Reports, 2017)

Angle two

Staying hired

Getting in is one fight. Staying in, at full hours, is the next one, and every restart sends us back through the interview.

38.1%
of working-age disabled adults had a job in 2025
74.8%
of working-age adults without a disability did

Ages 16 to 64, so retirees aren't padding the gap. Unemployment ran 8.8% for us and 4.1% for them. (Bureau of Labor Statistics, 2025)

30% vs 17%

usually work part-time

Disabled workers against everyone else, 2025. Fewer hours, smaller check. (Bureau of Labor Statistics, 2025)

58%

of autistic young adults had ever worked

By their early twenties. Young adults with learning disabilities were at 95%, and those with intellectual disability at 74%. The data is from 2009. (Roux et al., Drexel, 2015)

Fourteen months to find it, two years to lose it

Autistic 21-to-25-year-olds spent an average of 14 months looking for a job. The job lasted about 24 months. The most common reason they were out of work was that the job had been temporary and it ended. Then the search starts over. (Wei et al., Journal of Vocational Rehabilitation, 2018)

Angle three

The paycheck itself

Even with the full-time job, all year, the check comes in lighter. At the very bottom, the minimum wage doesn't apply to some of us at all.

83¢

on the dollar

Full-time, year-round workers with a disability had median earnings of $50,762 in 2024. Workers without one made $60,915. Over a 47-year career that's about $470,000. (Houtenville et al., Annual Disability Statistics Compendium, 2026)

$77.5B

in lost household income from ADHD

Adults with ADHD were less likely to hold full-time work, and their households earned less at every level of education. That was the authors' national estimate for a single year. (Biederman & Faraone, MedGenMed, 2006)

Below minimum wage is still legal

Section 14(c) of federal labor law lets certified employers pay disabled workers less than the minimum wage. About 40,579 people were paid that way in 2024. The Labor Department proposed ending it in December 2024 and withdrew the proposal in July 2025, saying the law requires it to keep issuing the certificates. (Federal Register, July 7, 2025)

Angle four

The cost of living like us

Then the smaller check goes out the door faster than theirs. Less coming in and more going out is how a household falls behind while paying every bill it remembers.

28%

more income for the same life

A household with a disabled adult needs about 28% more income to reach the same standard of living. At the median, that's roughly $17,690 a year. (National Disability Institute, 2020)

24% → 35%

poverty, once you count the extra costs

Count what disability actually costs, and the poverty rate for households with a working-age disabled adult jumps from 24% to 35%. About 2.2 million more people. (National Disability Institute, 2020)

The ADHD tax

Our word for it. The late fee. The subscription you meant to cancel. The charger, the keys, the second copy of the book you already own. Rush shipping because the deadline snuck up. The no-show fee for the appointment that fell out of your head. No agency tracks it. Every one of us could put a number on last month's.

Angle five

What piles up

Year after year, that turns into a hole. This is where a thin month becomes a credit score, and the credit score makes every month after it more expensive.

23.6% vs 9.6%

in poverty, ages 18 to 64

Disabled adults against everyone else, 2024. For people with a cognitive disability it's 26.5%. (Houtenville et al., 2026)

10% vs 30%

financially healthy

Working-age people with disabilities against those without. A third of the disabled group were rated financially vulnerable, twice the rate of everyone else. (Financial Health Network, 2023)

11.2%

have no bank account

Working-age households with a disability in 2023, nearly three times the rate for households without one. No account means check-cashing fees and prepaid cards, which is the poverty tax with a storefront. (FDIC survey via National Disability Institute, 2024)

6×

by forty

A study of everyone in Sweden found adults with ADHD start out with normal credit and normal default rates. In middle age the defaults climb fast, and by forty the risk is more than six times the general population's. ADHD medication made no difference to their financial behavior. (Beauchaine, Ben-David & Bos, Science Advances, 2020)

Angle six

Who comes for us

A gap this wide draws people who know how to work it. When you're short on money, the offer that promises to fix it fast is the hardest one to hang up on.

48% vs 20%

tricked or pressured into handing over money

Autistic adults against non-autistic adults. It's the most lopsided number on this page. (Griffiths et al., Autism Research, 2019, mostly UK)

45% vs 25%

went without food, rent or medical care

Same study. Autistic adults were also twice as likely to owe more than they made in a year (26% against 13%), and three times as likely to have lost a home over rent or mortgage (12% against 4%). (Griffiths et al., 2019)

Angle seven

The rules for staying afloat

For those of us on disability benefits, the rules themselves keep us poor. The net is built so that climbing out of it can cost you the net.

$2,000

is all you're allowed to own on SSI

It hasn't moved since 1989. Indexed to inflation from 1972, it would have been $9,929 in 2023. Over two-thirds of people on SSI have no savings at all, and about 92% have less than $500. (Center on Budget and Policy Priorities, 2023)

$497

a month, the cost of getting married

Two single people on SSI can get $994 each in 2026. Married, they get $1,491 between them. The asset limit for the couple is $3,000, a thousand less than two single people. (Social Security Administration, 2026)

Every raise gets clawed back

On SSI, after the first $85 or so, every $2 you earn cuts your check by $1. On SSDI, earning over $1,690 a month in 2026 can end your cash benefit entirely once the trial work months run out. Work harder and the floor drops. (Social Security Administration, 2026)

Angle eight

Getting named, and getting treated

Most of the help on this page asks for paperwork that proves who you are. Getting that paper costs money, and a lot of us found out who we are after the years it would have helped most.

1 in 4

autistic women diagnosed as adults

Nearly one in four female patients with an autism diagnosis got it at 19 or older, double the rate for males (12%). Every year undiagnosed is a year without the accommodations or benefits that need a diagnosis. (Epic Research health-record analysis, 2025)

Oct 2022

the stimulant shortage started

The FDA still lists the generic for Adderall as currently in shortage. People diagnosed in adulthood also report the cost of the diagnosis and missing insurance as the barriers that held them up. (FDA drug shortage database; Abu-Ramadan et al., 2025)

Angle nine

Stacked on other gaps

Disability doesn't arrive alone. It lands on top of everything else a person is carrying.

~40%

of Black Americans with disabilities in poverty

Against 24% of white Americans with disabilities. The data is from 2015, and it's the newest national breakdown we found. (National Disability Institute, 2017)

3–6×

more likely to be autistic

Transgender and gender-diverse adults against cisgender adults, in a study of more than 600,000 people, mostly in the UK. Two sets of hiring bias, one résumé. (Warrier et al., Nature Communications, 2020)

Put it on one person.

Her cover letter mentions she's autistic and gets a quarter less interest. She takes the part-time job, because it's the one that called back. Her life costs 28% more to run than her coworker's. She gets diagnosed at 34, too late for most of what a diagnosis unlocks. If she's on SSI, she can't hold more than $2,000 without losing the check, and getting married would cost her $497 a month. And somebody on the phone knows exactly how to talk her out of what's left.

Nothing on that list is a budgeting mistake.

Part Two

The why behind the why

"We earn less and pay more" describes the gap. It doesn't explain it. Keep digging and it stops being about us.

On the surface

Fewer jobs, smaller checks, higher costs

That's what Part One measured. Stop here and it sounds like a character flaw. Most of us were told it was one, usually by someone holding a budgeting app.

One level down

Hiring grades the delivery

Strangers mark us down in seconds. The cover letter that says Asperger's gets a quarter less interest. The interview scores us on how we answer, and when the questions get clearer the gap shrinks. The work gets looked at last, if it gets looked at at all. (Sasson et al., 2017; Ameri et al., 2018; Maras et al., 2021)

Two levels down

The law has a hole where the damage is

The ADA doesn't reach employers with fewer than 15 workers, and that's where the callback penalty concentrated. Two major studies found employment of disabled men fell after the ADA passed. Other economists dispute why. The law turned 36 this year, and the gap in Part One is still there. (Ameri et al., 2018; Acemoglu & Angrist, Journal of Political Economy, 2001; DeLeire, 2000)

Three levels down

Keeping the job costs more than doing it

Plenty of us get in by masking. Autistic adults describe it as exhausting, and as the thing that keeps them employed. Burnout research heard the rest of the story: years of suppressing yourself to fit in, then an exhaustion deep enough to take skills, health and the job with it. We lose jobs to the performance wrapped around the work. (Hull et al., 2017; Cage & Troxell-Whitman, 2019; Raymaker et al., Autism in Adulthood, 2020)

Four levels down

The system hands us its chores

Renewals, appeals, portals, the form that wants a document you can't find. Researchers call it administrative burden. It lands hardest on people with the least executive function to spare, which is us by definition. The Swedish study fits here too. ADHD medication didn't change the money outcomes. A pill doesn't file the renewal. (Christensen et al., Public Administration Review, 2020; Beauchaine et al., 2020)

Five levels down

Some of it is on purpose

The researchers who named administrative burden call it "policymaking by other means." Make a benefit hard enough to get and fewer people get it, and nobody had to vote to cut it. Look at what's been left alone. A $2,000 savings cap untouched since 1989. A marriage penalty. A subminimum wage the Labor Department just decided to keep. Leaving something alone for 37 years is a choice. (Herd & Moynihan, 2018; CBPP, 2023; Federal Register, 2025)

The bottom

The people it fails worst never get to build it

Hiring, benefits and billing are designed by people they work fine for. And there's money in the gap staying open. We get tricked out of money at more than twice the rate. Most of us came here from a community that charged a monthly fee to belong. When the people who need a thing to work differently are the last ones asked, it never changes.

Change the bottom rung and the ones above it start to move. The people living in the gap know where it cuts, and that knowledge is worth something. Part Three is what's already within reach. Part Four is a way to build more of it.

Part Three

What's out there for us

Everything we found that one person can pick up and use without waiting for an employer to change. None of it closes the gap alone. Stacked the way the gap stacks, it takes real ground back.

Each entry was checked against the program's own website, with who it's for, what it costs, how to start, and the catch. They're grouped by the part of the gap they push against.

Full disclosure: three of these are mine. I founded TranquilTech, and it builds JobGenie, Attuned Work Design and Inner Workings. They're marked so you can weigh them next to everything else here. Part Four is where the company comes in, and you get to decide on it.

Getting in the door

These push back on the callback penalty and the restart cycle: better leads, the right to ask for accommodations, and help most of us were never pointed to.

Ours · TranquilTech

JobGenie

You give it your target role, location and résumé. It finds openings, confirms each one is actually still open, writes a résumé and cover letter for every role, and ranks them by your odds of an interview and a hire. The board gets rechecked every week as postings expire.

Who
Not stated. Right now it's a small first group, built by hand.
Cost
Not published yet.
Start
Join the waitlist on the home page.
Catch
It's early. The sample board on the site is a demo, not a live search.
Free for most of us, in every state

Vocational Rehabilitation

A federally funded job agency in every state. It can pay for counseling, training, books and tools, job placement, job coaching and assistive tech. Almost none of us use it: between 2008 and 2016, about 99% of autistic adults who likely needed job services got none through VR or Medicaid.

Who
Anyone whose disability gets in the way of work and who needs help to get, keep or move up in a job. On SSI or SSDI, you're presumed eligible.
Cost
Free on SSI or SSDI. Otherwise some states ask you to share costs on some services, based on income.
Start
Search "vocational rehabilitation" plus your state and apply to the state agency.
Catch
Some states have waitlists. California puts new eligible applicants on one.
Drexel University, 2023 · federal VR rules
Free and confidential

Job Accommodation Network

A federally funded advice line on workplace accommodations and your rights under the ADA. Tell them what's hard at work and they'll tell you which accommodations fit and how to ask. They also answer questions about starting a business with a disability.

Who
Workers, job seekers, family and advocates, as well as employers.
Cost
Free. You can stay anonymous.
Start
Call (800) 526-7234, weekdays 9 to 6 Eastern, email JAN@AskJAN.org, or send a question through the online form.
Catch
Advice, not a lawyer. Their live chat is for employers.
Built for neurodivergent job seekers

Mentra

A job network where you build a strengths-based profile that partner employers' recruiters see. Its app, Manatee, sends a daily job pick and short skill lessons, and lets you message recruiters and mentors. It ran a free four-week virtual career series earlier this year.

Who
Neurodivergent job seekers.
Cost
No cost to job seekers. Employers pay.
Start
Sign up on the site or download Manatee.
Catch
The jobs lean hard toward tech: data, software, cybersecurity.

Building work that fits

If hiring grades the delivery, one answer is to skip the interview. Disabled workers are already self-employed at a higher rate than everyone else (9.1% against 5.9%). (Bureau of Labor Statistics, 2025) These make it less of a leap.

Ours · TranquilTech

Attuned Work Design

A free interview about how you actually work, asking about your working life and never your health. You get a report and a full preview of The Long Work, a plan for a business shaped around you. The report will tell you to wait if the timing's wrong. It's built for people who leave jobs because of the environment and not the work.

Who
Anyone. No eligibility rules.
Cost
Interview, report and preview are free. The Long Work is $99, one time. A build is $199, then $99 a month to host and maintain it, plus AI costs with 15% added (no markup if you bring your own key).
Start
Start the interview. No timer, and it saves on your device.
Catch
Buying isn't open yet. The build runs on their platform and you don't get the code, though you can export your content and customers.
If you're on SSI, or would be

PASS: Plan to Achieve Self-Support

A written plan that lets you set money aside for a work goal without it counting against SSI. You can set aside wages, SSDI or savings, and spend it on school, tools, transportation or starting a business.

Who
People on SSI, or who'd qualify for it if not for their income or savings. That can include people on SSDI.
Cost
Free. Anyone can help you write it.
Start
Form SSA-545 from ssa.gov or your local office. A PASS specialist reviews it: 1-800-772-1213.
Catch
You need money other than your SSI check to set aside. A business goal needs a business plan.
Through your state VR office

VR self-employment plans

Federal rules let every state VR agency pay for occupational licenses, tools, equipment, starting inventory and supplies, plus help with market research and a business plan, when self-employment is your written goal.

Who
Anyone eligible for VR whose plan names self-employment.
Cost
Same as VR. Free on SSI or SSDI.
Start
Tell your VR counselor you want self-employment written into your plan.
Catch
How much each state will pay, and any caps, varies.
Free mentoring

SCORE

Free, confidential mentoring from volunteer business mentors, plus workshops and templates. Partly funded by the Small Business Administration. Useful for the parts nobody explains: pricing, taxes, the first contract.

Who
Anyone starting or running a small business.
Cost
Free.
Start
Enter your ZIP on the site to get matched with a mentor.
Catch
It's advice. The mentor won't do the work for you.

Getting it on paper

A lot of the doors on this page ask for documentation. For late-diagnosed and undiagnosed adults, that's the first wall.

Ours · TranquilTech

Inner Workings

Free adult autism screening with four published questionnaires: the AQ (50 items), CAT-Q (25), EQ (40, the current adult form) and RAADS-R (80). All 195 items scored in full, with a report organized for a clinician to read. Something solid to walk into the appointment with.

Who
Anyone.
Cost
Free. No account, and nobody asks for your email.
Start
Start the questionnaires. It takes 45 to 75 minutes, and you can pause.
Catch
It's a screening, not a diagnosis. Answers live only in your browser, so clearing it erases them.
Autistic-led

Embrace Autism

Free online versions of the AQ, CAT-Q, EQ, RAADS-R and more, each with an explanation of what it measures. They also sell screening and diagnostic assessments with licensed psychologists.

Who
Anyone.
Cost
Taking the tests and seeing your score is free. A personalized interpretation PDF is $3.50 per test.
Start
Pick a test from the autism tests page.
Catch
Their EQ is the longer 60-statement version, so scores won't line up exactly with other sites. Educational screeners, not diagnosis.

Working without losing your floor

This is the answer to angle seven. The rules that claw back a raise also have exceptions built in, and most people on benefits never hear about them. These are those exceptions, plus the people whose job is to walk you through them.

If you're on SSI or SSDI

Ticket to Work

Social Security's free, voluntary job program. It connects you with Employment Networks or your state VR agency for career help. If you assign your Ticket before a medical review notice arrives and keep making progress, Social Security won't review your medical condition.

Who
Ages 18 through 64, getting SSI or SSDI because of a disability.
Cost
Free.
Start
Call 1-866-968-7842, weekdays 8 to 8 Eastern. There's no paper ticket anymore.
Catch
The review protection only holds if you assign it before the notice and keep progressing.
Call them before you move money

WIPA benefits counseling

Free, one-on-one counselors who work out what a job, a raise or a savings account will do to your benefits before you make the move. A wrong step with SSI can cost you the check.

Who
People on SSDI or SSI disability, from 14 to full retirement age.
Cost
Free.
Start
Same number, 1-866-968-7842, or the Find Help tool on choosework.ssa.gov.
Catch
It covers benefits, not the job hunt. Call before you accept an offer.
If you're on SSDI

The trial work period

You get nine trial months to test working and keep your full SSDI check. In 2026, any month you earn over $1,210 uses one. After that, the line to watch is $1,690 a month ($2,830 if you're blind).

Who
SSDI beneficiaries.
Cost
None. It's a rule, not a program.
Start
Report your earnings to Social Security, and check with WIPA first.
Catch
Once the trial months are used up, earning over the line can end your cash benefit.
If you're on SSI

The earned income rules and 1619(b)

SSI doesn't count the first $65 you earn in a month, or half of everything after that, on top of a general $20 exclusion. And if your earnings end your SSI check, Section 1619(b) can keep your Medicaid anyway, up to a threshold your state sets.

Who
SSI recipients who work.
Cost
None.
Start
Report wages every month. Ask WIPA for your state's 1619(b) threshold.
Catch
You still lose a dollar for every two you earn past the exclusions.
In 47 states

Medicaid Buy-In

Lets working people with disabilities keep Medicaid while earning more than the usual limits, sometimes for a monthly premium.

Who
Working adults with a disability, rules set by each state.
Cost
Some states charge a monthly premium, based on income.
Start
Apply through your state Medicaid agency.
Catch
Every state runs it differently, and a few don't have one.
When the system says no

Protection & Advocacy

Every state has a Protection & Advocacy agency. Its PABSS program gives free legal help to people on SSI or SSDI who hit barriers to working. Its Client Assistance Program helps when you're fighting with VR.

Who
People with disabilities. PABSS is for SSI and SSDI recipients.
Cost
Free.
Start
Find your state's agency at ndrn.org.
Catch
PABSS is about barriers to work. For other benefit fights, ask what your state's agency covers.

Keeping what you have

This is where the extra costs and the pile-up get pushed back: a legal way to save, free help at tax time, and fewer fees leaking out every month.

Expanded this year

ABLE accounts

A tax-advantaged savings account where up to $100,000 doesn't count against SSI's $2,000 limit. Since January 2026 you qualify if your disability began before 46. It used to be 26, so a lot of late-diagnosed adults just became eligible. Up to $20,000 a year can go in from anyone, and if you work, you may be able to add more.

Who
Disability that began before 46, through SSI or SSDI, or by self-certifying with a doctor's diagnosis showing marked and severe limits.
Cost
Depends on the state plan you pick. You can open one in any state's plan that takes out-of-state residents.
Start
Compare plans at ablenrc.org.
Catch
One account per person. After you die, Medicaid may claim what's left.
Free, at tax time

VITA free tax prep

IRS-certified volunteers prepare basic returns for free, with every return quality-checked. It's how a lot of people find credits they didn't know they were owed.

Who
Many sites serve people earning about $70,000 or less, people with disabilities, and people with limited English. Each site sets its own limits.
Cost
Free.
Start
Use the VITA locator on irs.gov or call 800-906-9887.
Catch
Basic returns. What a site can handle depends on its volunteers.
A monthly discount

Lifeline

A federal program that takes up to $9.25 a month off phone or internet service.

Who
Income at or under 135% of the federal poverty guidelines, or on SSI, Medicaid or SNAP.
Cost
Free to apply.
Start
Apply at getinternet.gov.
Catch
One discount per household.
What members do

Plugging the ADHD tax

Autopay on the fixed bills so nothing hinges on remembering. Due dates moved to the day after payday. One look at every subscription on the first of the month. A single spot by the door where the charger and keys live.

Who
Anyone who's paid a late fee on money they had.
Cost
Nothing but a phone call asking for a new due date.
Start
Pick the one bill that's cost you the most in fees.
Catch
Autopay can overdraw a thin account. Keep a small buffer.

Doing it together

The bottom rung was that the people the system fails worst never get to shape it. This is where we do. Most of it costs nothing, and most of it could start in this room.

Zero interest, builds credit

Lending circles

Six to twelve people each pay in every month, usually $50 to $200, and each month one of them gets the whole pot, from $300 to $2,400. Mission Asset Fund charges 0% interest and reports every payment to all three credit bureaus.

Who
Anyone who applies, takes MAF's financial-education course, and joins a group.
Cost
0% interest.
Start
Apply online or through the MyMAF app.
Catch
Only where MAF has circles running. Check your ZIP.
Costs nothing

Money body-doubling

The envelope you've been avoiding gets opened on camera, with someone else there opening theirs. The trick that gets the dishes done works on the bills too.

Who
Anyone with an unopened envelope.
Start
Say the word tonight and we'll set a time.
Costs nothing

A skill swap

One of us writes a killer appeal letter. One of us can make a résumé sing. One of us knows the SSI rules cold. Post what you can give and what you need, and trade.

Who
Everyone has something on one side of the ledger.
Start
One post on the Skool board.
Costs nothing

Shared templates

The accommodation request that worked. The insurance appeal that won. Every one we collect is one the next person doesn't have to write from scratch at 2 a.m.

Who
Anyone who ever won a fight on paper.
Start
Strip your details out and post it.
Part Four · The proposal

Bringing NeuroSpicy Refugees under TranquilTech's care

This is the pitch. I'm making it in the open, it's yours to decide, and the terms are written down before anyone agrees to anything.

TranquilTech exists because of that bottom rung. Its tools start from the person the system fails worst and put the burden back on the system. This room is where I learned what those tools needed to do. The proposal is to make that relationship official, with the community protected in writing.

What's proposed

  • Membership stays free. The constitution already says it will never require payment. That doesn't change.
  • The community stays consensus-run. Stewards and members make the decisions. TranquilTech doesn't moderate.
  • TranquilTech pays the running costs. That's the Skool fee and the paid Zoom, under $30 a month, posted publicly the way the constitution already requires for any money.
  • Joining puts nobody on a sales list.
  • Investors can hear how many members there are, never what anyone said.
  • A written way out. If the community ever wants to leave, it leaves with its name, its members and its records. This one is new, and it goes into the constitution next to the rest.

All of this would be written into the constitution as a new article, so the promises live in our rules and not only on the company's website.

What we'd get

A community that no longer runs on one person's time and one person's card. Tools built from the problems this room actually has, with members asked first. Down the road, a home of our own instead of rented space.

What TranquilTech gets

To be straight about it: the company gets to be close to the people its tools are for, and to tell investors that a real community stands behind the work. It gets our trust, and it has to keep earning it.

The obvious objection is that we've seen this before, a company wrapped around a community. We left one. The difference has to be in writing, so it's in writing: free forever, run by us, no sales list, no access to what anyone says, and the door out stays unlocked. If any of that breaks, the constitution says what happens next.

How it gets decided

Open consensus, step by step

Tonight the proposal goes public

It's posted in the governance channel, and a comment period of at least 14 days starts.

Everyone weighs in

In sessions, in the thread, or privately. Objections are the useful part.

The room decides by open consensus

Silence counts as consent. Any objection gets said out loud and worked through before anything is adopted.

The steward seats stay open

Any member active for at least 60 days can put their name forward, now or later.

Why now: I can't keep running this alone.

One steward is a single point of failure. This proposal is my best answer for keeping the room open and paid for while the work gets shared. If you've got a better one, I want to hear it tonight.

Tell me yes, tell me no, or tell me what would change your mind. And if you've been here 60 days and this place matters to you, think about one of those seats.

The lines you've heard

What people say

"Just make a budget."
A budget sorts the money you have. The gap is money you never got and fees you paid for how you're built. Tracking it more carefully won't bring any of it back.
"Build an emergency fund."
On SSI, $2,001 in the bank can stop your check. The legal way to save is an ABLE account or a PASS, and somebody should have told you that years ago.
"Get a better job."
Working-age disabled adults are employed at about half the rate of everyone else, and the interview grades your delivery before it looks at your work. The free job help exists. Almost none of us have been pointed to it.

Every one of us has been paying the same bill alone.

The receipts

Where all of this comes from

The research and sources behind tonight

Ameri, Schur, Adya, Bentley, McKay & Kruse (2018). "The Disability Employment Puzzle: A Field Experiment on Employer Hiring Behavior." ILR Review. 6,016 applications; 26% fewer expressions of employer interest when a disability was disclosed, 34% for experienced applicants.
Maras, Norris, Nicholson, Heasman, Remington & Crane (2021). Autistic interviewees and job interview questions. Autism. UK study.
Sasson et al. (2017). "Neurotypical Peers are Less Willing to Interact with Those with Autism based on Thin Slice Judgments." Scientific Reports.
US Bureau of Labor Statistics (2025). "Persons with a Disability: Labor Force Characteristics." Employment ages 16 to 64: 38.1% and 74.8%. Unemployment 8.8% and 4.1%. Part-time about 30% and 17%.
Roux, Shattuck, Rast, Rava & Anderson (2015). National Autism Indicators Report: Transition into Young Adulthood. Drexel University. Data collected in 2009.
Wei, Yu, Wagner, Hudson, Roux, Shattuck & Blackorby (2018). Job search and job duration among young adults with autism. Journal of Vocational Rehabilitation.
Houtenville et al. (2026). Annual Disability Statistics Compendium. University of New Hampshire Institute on Disability. American Community Survey 2024 earnings and poverty data.
Biederman & Faraone (2006). "The effects of attention-deficit/hyperactivity disorder on employment and household income." MedGenMed.
US Department of Labor (2025). Withdrawal of the proposed rule on Section 14(c) subminimum wage certificates. Federal Register, July 7, 2025.
National Disability Institute (2020). "The Extra Costs of Living with a Disability in the U.S." 28% more income; poverty from 24% to 35% once extra costs are counted.
Warren, Chege, Greene & Berdie (2023). "The Financial Health of People With Disabilities." Financial Health Network.
National Disability Institute (2024) on the FDIC 2023 household survey: 11.2% of working-age households with disabilities unbanked.
Beauchaine, Ben-David & Bos (2020). "ADHD, financial distress, and suicide in adulthood: A population study." Science Advances. Sweden.
Griffiths, Allison, Kenny, Holt, Smith & Baron-Cohen (2019). "The Vulnerability Experiences Quotient (VEQ)." Autism Research. Mostly UK.
Romig, Nuñez & Sherman (2023). "The Case for Updating SSI Asset Limits." Center on Budget and Policy Priorities.
Social Security Administration (2026) on SSI payment amounts, income exclusions, substantial gainful activity, the trial work period, PASS and Section 1619(b).
Epic Research (2025). Adult autism diagnosis by sex, from health-record data. Abu-Ramadan et al. (2025), Journal of Autism and Developmental Disorders, on barriers to adult diagnosis. FDA drug shortage database.
National Disability Institute (2017). Financial Inequality: Disability, Race and Poverty in America. Warrier et al. (2020), Nature Communications, on gender diversity and autism.
Acemoglu & Angrist (2001), Journal of Political Economy, and DeLeire (2000), Journal of Human Resources, on employment after the ADA.
Hull et al. (2017) and Cage & Troxell-Whitman (2019), Journal of Autism and Developmental Disorders, on camouflaging. Raymaker et al. (2020), Autism in Adulthood, on autistic burnout.
Christensen, Aarøe, Baekgaard, Herd & Moynihan (2020), Public Administration Review, and Herd & Moynihan (2018), Administrative Burden: Policymaking by Other Means.
Program details from each program's own site: jobgenie.help, attuned.you, innerworkings.space, askjan.org, mentra.com, choosework.ssa.gov, ssa.gov, score.org, embrace-autism.com, ablenrc.org, irs.gov, getinternet.gov, ndrn.org, missionassetfund.org, and federal VR rules. Drexel University (2023) on employment services. KFF on Medicaid Buy-In. The NeuroSpicy Refugees constitution on proposals, stewards and amendments.

We name the sources because the numbers are borrowed, and because you've probably been told this was a character flaw. It's a measured gap.

How we hold this

  • You can pass on anything. Pass is a complete sentence.
  • Nobody has to say a number. Money talk is its own kind of exposure, and you decide how much.
  • A no said out loud helps more than a quiet exit. Disagreeing with the proposal is welcome here, including with me.
  • Camera off, blanket on, stimming freely. Come however you can come.

None of this is financial or legal advice. We're peers comparing notes. Benefits rules turn on the details of your situation, so if you're on SSI or SSDI, talk to a free benefits counselor before you move money around. And if this one brings up shame about years of fees and missed chances, notice where it came from. You were running the same race with a heavier pack.

Nobody closes this alone. So we don't.

Bring the envelope you've been dodging, and bring what you think of the proposal. We'll open both together.